Raising a child with Tourette Syndrome can be a challenging experience. From finding the right kind of specialist to navigating everyday interactions with peers and the community, parents of children with Tourette’s Syndrome have their work cut out for them.
As a neurological disorder that affects 1 out of every 162 children between the ages of 6-17 in the United States, Tourette Syndrome often remains misunderstood, stigmatized, and underdiagnosed. That is why educating the broader community about this condition is critical for improving the lives of those affected.
Wearing a simple Tourette’s awareness bracelet, for example, can make a meaningful difference in raising awareness, fostering empathy and tolerance, and increasing understanding of this complex condition.
Understanding Tourette syndrome
Before we discuss Tourette’s awareness bracelet, it is essential to understand what Tourette Syndrome is and how it affects those who live with it. Tourette Syndrome is a neurological disorder that affects children and adults and is characterized by repetitive movements, involuntary movements and vocalizations known as tics.
These are divided into motor and vocal tics ranging from simple movements like eye blinking, shoulder shrugging, and facial grimacing to more complex ones like jumping, touching objects repeatedly, and coprolalia, characterized by involuntary utterances of words or socially inappropriate phrases. Motor and vocal tics, beyond a person’s control, can be categorized as simple or complex.
Simple motor tics involve activating a single muscle group, while complex vocal tics can consist of a combination of multiple simple motor tics or a sequence of movements involving multiple muscle groups.
Complex motor tics encompass coordinated movements involving multiple muscle groups. These tics are typically slower and deliberate in nature, such as hopping, twirling, or jumping.
How is Tourette syndrome diagnosed?
A diagnosis of Tourette syndrome (TS) is typically made when an individual exhibits both motor and vocal tic symptoms, which have persisted for a minimum of one year.
Tourette syndrome does not have a specific diagnostic test. Instead, doctors rely on a combination of factors such as family history, medical history, and the individual’s symptoms of behavioral or conduct issues to make an accurate diagnosis.
In some cases, additional tests like magnetic resonance imaging (MRI), computerized tomography (CT) scans, electroencephalograms (EEGs), or blood tests may be conducted to rule out other conditions that could present similar symptoms to TS. By carefully considering these aspects, healthcare professionals can effectively diagnose Tourette syndrome.
Social Stigma and Bullying Experiences
A study published in the Journal of Development Behavioral Pediatrics found that 56.1% of children with Tourette Syndrome experienced being bullied or socially excluded due to their vocal tics, motor tics, and other symptoms.
This is why at Alert Me Bands, we believe a Tourette’s awareness bracelet can be a powerful tool in educating people about Tourette Syndrome, correcting misconceptions, and reducing stigma. The experience of being bullied or socially excluded due to Tourette Syndrome can have a significant impact on a child’s mental health and well-being.
It can lead to shame, anxiety, embarrassment, and isolation, causing individuals to hide their tics or avoid social situations altogether.
How a Tourette’s Awareness Bracelet Can Make a Difference
While a cure for Tourette’s syndrome remains elusive, effective treatment options exist to manage its symptoms. It’s worth noting that while individuals with Tourette’s syndrome experience severe tics, they may also grapple with co-occurring conditions such as obsessive-compulsive disorder (OCD), attention deficit hyperactivity disorder (ADHD), or learning difficulties. In some severe cases, medication, therapy, and deep brain stimulation might be needed to manage Tourettes.
People with Tourette syndrome might need extra support from parents, educators, and other professionals to manage their complex tics and other symptoms of Tourette syndrome. A great way to do this is through a Tourette’s awareness bracelet or necklace.
Wearing jewelry that acknowledges one’s condition can be incredibly empowering for those who struggle with it, as it reminds them of their strength and resilience.
At Alert Me Bands, we recognize the importance of raising awareness about Tourette Syndrome and providing resources to those with it. That’s why we created our custom Tourette’s awareness bracelets, bracelets for OCD and anxiety disorder, so that individuals everywhere can show their pride in being part of this community.
The bracelet is a simple yet effective tool that helps to break down barriers, foster empathy, and increase understanding. When other people wear the bracelet, they support those with Tourette’s and other tic disorders, signaling that they understand and are willing to learn more about this condition.
Alert Me Bands: The Ultimate Choice of Parents!
Alert Me Band’s Tourettes awareness bracelet is the ultimate choice for advocates looking to spread awareness and create clarity about Tourettes Syndrome. It is a simple yet effective way of staying true to their cause while ensuring that their child can function well in social situations.
The Tourettes awareness bracelets come in a variety of patterns and colors, making it easy to find the perfect one for your child. It is comfortable, durable, waterproof, and easy to wear.
Not just that, they are Childproof and also come with a locking Tie! This makes them even more secure and ensures that your kid can’t tamper with it.
Apart from being a physical reminder of Tourettes Syndrome, Alert Me Band’s Tourette awareness bracelets are also a symbol of hope for those living with the condition. It is an acknowledgment that they are not alone in this struggle and that there are people around them who care enough to learn more about their disorder.
Frequently Asked Questions
What is the color for Tourette’s?
The color associated with Tourette Syndrome is blue. This symbolizes the hope and strength of those living with TS, and serves to remind people to be aware of the condition. At Alert Me
Bands offer a variety of benefits for those living with Tourette’s Syndrome. Not only do they serve as a physical reminder and source of comfort, but they also provide others with knowledge about your condition. This helps reduce stigma, build relationships, create connections, and ensure you get the support you need. Additionally, because they come in various colors and patterns it makes them fun to wear!
What causes Tourette’s to flare Up?
There are numerous factors that can trigger a Tourette’s flare up from simple tics to complex tics. While the exact cause of TS is not known, environmental stressors, physical fatigue, psychological distress, and even certain foods can cause several muscle groups to act. It is important to be aware of your own triggers so you can identify them before they become too intense. Identifying these triggers can help you better manage and prepare for future episodes.
Can an adult get Tourette?
Adult-onset cases are exceptionally uncommon and may occur when childhood tics resurface due to underlying mental disorders. There have been reports of a psychogenic motor and voice itch that resembles late onset GTS.
What is a medical ID for Tourettes?
A medical ID for Tourette Syndrome provides everyday protection and peace of mind.. Often combined with severe TS conditions, medical ID jewelry at Alert Me Bands offers daily protection. We advise to list the names of guardians, diagnoses, medications, allergies and emergencies.